The morning started off a bit rough - we weren't able to see him until early afternoon because of some business in the nursery, but he was doing well all the while & we made up for it in the afternoon.
You can see in his little picture his shaved head & the VAD there on top where they're draining some of the fluid. We watched them do that today. I thought I wouldn't be able to watch, but it was actually really interesting. Everything has been so far. I'm surprised at all of the things I've been able to stomach. Maybe I could have been a nurse after all...
Then we got to help his nurse clean up some of the glue on his head & face & everything from the respirator & band-aids & things.
The little splints on his arms look a lot worse than they are. They're just stretching the muscles in his hands. It was actually really cool. We watched the occupational therapist make them for him so they fit his little hands perfectly. They are SO adorable on him. They look like little wings when he raises his arms. He's not a big fan of them yet. There was actually a tiny bit of velcro on one of them that wasn't covered & he got them stuck together when he was wiggling around. He's already making us laugh lots - very fitting of his name :)
He's off of all breathing tubes & monitors. He just has an IV in his leg for antibiotics, & a more permanent IV in his other leg for everything else. & he's pooping. I never thought that would be such a big deal or make us so happy. But that is really good news, because it means his surgery was successful & his tummy is working well, so the doctor gave him the a-ok to start feeding him this afternoon. He guzzled it down SO fast & seems to be digesting everything really well so far.
We got a bit of an idea of what will need to happen before he comes home, too. It could be Thanksgiving time, possibly. But mostly because theres another surgery that will need to happen with his intestines that will happen in 6 to 8 weeks & depending on how well he eats & how his tummy heals, we may be able to bring him home for a bit in between time. But that also will depend on if the fluid in his brain keeps on accumulating or if it just drains and is okay, which is what we are praying for. So we will try to be patient & we really do want him healthy & strong before he comes home, so we'll just have to get used to this type of 'normal' for at least a little while.
Thank you thank you for continued prayers for us & our little boy! We can't wait for you all to meet him & we can't wait for him to meet all of the people who have been praying for him all this time!