Oct 29, 2013

{now we have turned two}





*just a quick note on the birthday party theme, since a few people have mentioned it. my family is native american & i'm very proud of my heritage & culture & have studied & understand where my family comes from & our history. this was just a fun way for my family to celebrate our heritage & also have fun with our friends. we kept it lighthearted & dressed up because its a two years olds party. my intent wasn't to offend, or mock a culture. thank you so much for your thoughts - we really felt we were able to do this with a clear conscience & just have fun!*

isaac turns two years old earlier this month. i don't know where the time has gone with him at all.
i've been thinking the past few weeks about his years with us - i feel as though a lot of you have really been on this journey together with our family & have been so faithful to pray for him. thank you is never enough, but thank you, still, from the bottom of our hearts!

he has actually showed a lot of forward motion in the past two or three months - something we don't take at all for granted around here. his vocabulary has exploded. he can say 20-30 words - in his own special way. we're able to figure most of them out ;)

one big thing that has changed for us in the past few months is that we have come to realize that his kidney disease is actually more serious than we though. he has moderate kidney failure & his function is slowly decreasing. this means we will probably {eventually} need a kidney transplant, along with everything else. years & years away, hopefully. we aren't going there yet, but for now a preventative measure is monitoring his diet more closely & limiting his intake of protein.

so, right now i could tell you that i'm okay with this new development. i'm starting to understand it a bit better & parts of it have actually been a positive thing for us - i'll explain that in a minute. but when i was first given the news i was NOT okay. i was stressed to the max at the thought of changing isaacs diet - a diet that was almost 100% milk based {still not much of a food eater, that kid...} & receiving news that now he couldn't even have all of his milk was just crazy talk. a quick side note just to explain that - from what i understand, when your kidneys aren't working right, its hard for your body to process protein & your kidneys work even harder & wear out more quickly. meaning you would need a kidney transplant sooner than later. so its definitely a valid concern. but isaac is just...complicated. so adding in the fact that its still so hard to feed him any solids - or really even juice for that matter - this was a problem, BUT the crazy/wonderful/glorious part of this was that we decided to test out this diet, & as we gave him less milk, he actually started eating solid foods (!!!) very very small amounts, but he is getting better each week, so that now, three months later, he is able to feed himself little bits of whatever we are eating - so long as its mashed & easy to chew. some days he still eats better than others but we are super encouraged by this. he has also gained a pound and a half in the past three months which is FABULOUS for him. up until these changes we had been talking about finally just getting him a g-tube, but he is doing SO well right now all of that is on hold again. good news :)

now you are updated. that is all of the big stuff - with some doctor visits in between. oh, & a trip to minnesota to visit a transplant hospital! that was kind of a big deal too. we're just doing some early scouting, so nothing really urgent at this point.

all of the photos are from isaacs birthday party. its pretty self explanatory. we had an indian party. with lots of feather & face paint & he loved it. he was much more curious about everything than last year. so fun to see :)

17 comments:

  1. Oh my goodness. I rad that title and for a second, I thought that it meant that Isaac had died and my heart dropped. I was majorly freaked out. (Even though, of course, if that had happened, I'm sure you wouldn't necessarily be posting a blog to say the least.)

    I'm not actually entirely sure how I found your blog in the first place, but I've been reading since Isaac was born and I can't believe it's been two years!

    Sheese. Okay. Sorry for the heavy comment.

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    1. oh no! i didn't even think about that. goodness. i may want to rethink that. i totally see where you got it. it was just a little pun off of an a.a. milne book.

      i can't believe its been so long either! crazy!

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  2. I came across your blog recently and would like to thank you for writing. My son will be 2 on Saturday and he was just diagnosed with FA. We are so grateful that he is happy and healthy right now. But are just gathering information and wondering what our future holds. So thank you for blogging!

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  3. I think this is one of the cutest themed birthday parties I have ever seen!

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  5. What beautiful pictures, it is so wonderful to see children as the centre of all the adults love and attention. I come from Scotland and there are many stereotypes about our culture - that we eat porridge and haggis all day or that we are drunks or that all the men wear kilts. We don't mind though and, as you have done here, we actually enjoy some of the fun not very historically accurate stuff too. There are plenty of Scots who put silly red wigs on with tartan tammys or do silly dances at ceilidhs if they're not such expert dancers. It is all fun. We are a very (very!) proud culture but confident enough about ourselves to reclaim the stereotypes for ourselves and laugh with them.

    Anyway, those are just my thoughts. How complex the world is! I have a Kurdish friend whose father and sister were arrested and tortured for simply being school teachers and seen as potential terrorists. Now that is a true injustice against someone for their cultural heritage. Perhaps some of those who made comments could take up this serious cause instead?

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  7. Happy birthday to your little boy. I pray for Isaac and both of you every night. I want you to know that I admire you.

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  8. A few weeks ago, I came actross your blog and just love it! This is such a cute party ♥

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  9. My husband is currently waiting for a kidney transplant (his second) so this post hits close to home. I just wanted to say my prayers are always with you and your sweet family.

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  10. Wow, two years! I have been following your blog since before you were pregnant, and I have loved reading. I especially enjoy all your clean, green living tips and yummy recipes. I've been wondering for a while, do you still use the tooth soap and the natural hair cider?

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  11. Melinda, we live in the very North part of Missouri and would just love it if you guts could stop by on your way to MN. I'm sure you will fly, but if you drive and need a place to stay, we would be so excited to see you guys!!!

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  12. @alyssa - i actually have a new recipe for toothpaste. i should post it! we've been using it for about a year. & i also did the 'no poo' until about 6 months ago. my scalp was getting itchy, so i switched to a natural shampoo. i still do the ACV rinse about once a month, though!

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  13. I haven't posted or blogged in a long, long time. I am so happy to see Isaac doing so well. What a little blessing his is. Love these photos. Perfect theme. :)

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