May 29, 2013

{A Latte for FA + A Pretty Neat Giveaway}

GIVEAWAY CLOSED! 
thank you all from the bottom of our hearts for making this such a success.
we are announcing the winner friday morning!


Today is a very special day. One we have been planning for for a long time. Today we are doing a couple things - we are first, raising money for FA & also giving away a fun package of things picked just for you. 100% of the proceeds will go to the Fanconi Anemia Research Fund.

{This part is all research stuff. Just know this will really help Isaac. A lot!!!}

Last fall we were able to get together with the people that run FARF at Camp Sunshine.
We wouldn't fundraise for anything we didn't feel was incredibly hopeful. I know money just doesn't happen in abundance for most of us, but we really believe in what this group is doing.
For example, successful unrelated donor matches for FA has risen from 0% in 1989 to over 89% in some specialized transplant centers. An unrelated donor transplant is what we are probably looking at with Isaac right now, so that is GOOD NEWS! & for us right now, the most exciting bit of research happening is with gene therapy, which basically would mean no transplants! More on research info here.


SO HERE IS WHAT WE'RE GIVING AWAY!



AND AS A VERY SPECIAL THANK YOU




1. Click on the picture of Isaac above to donate - We are actually going to be writing out each name by hand & letting Isaac pick one.We figure if you are taking the time to donate, we can take the time to write out each of your names! So each $5 is your name in a jar.

2. If you donate $25 or more we would like to say a very extra special thank you & send you a print.  Just note A, B, C or D in the comment section when you donate & include your address for us.
We have connected up with some fabulous artists that have made this possible, so THANK YOU to Dan Romanoski {a}, Eric Hurtgen {b}, Sarah Helser {c}, & Seth Remsnyder {d}

*note: we have a limited number of the Eric Hurtgen print {b} so please include a second option in case we run out.

**international donators: we so appreciate you being apart of this with us. we would love to cover as much of shipping as we can, but would appreciate if you could include $4 extra if you would like a print.

3. Comment below {just for fun} & spread the word. we will also be picking someone at random for repinning, tweeting, sharing etc...& send you a special something as well :)


Giveaway ends at midnite EST on June 5th. 

May 22, 2013

{save a baby isaac: donate your cord blood}


calling all: pregnant mommies, future mommies, friends of mommies & daddies: this is something AMAZING you can do to save a life. it is super simple. it requires little time, no extra doctor visits, procedures - nothing.

i'm talking about CORD BLOOD. 

did you know you could donate it? because i didn't, & i wish i had.
i have talked about becoming a bone marrow donor before, but cord blood is an alternative to bone marrow depending on the patient. its an either/or. so it is JUST as important.

even if this post doesn't apply to you particularly, please please SHARE IT! post it. pin it {thats why i have all the type across my photo today}. tweet it. the more i talk with people the more i realize that this isn't a widely known option. cord blood banking is becoming more talked about, but to know that if you don't choose to save your cord blood there is an incredible, life saving alternative to throwing it away!

i am going to walk you thru all of the steps to getting you informed as best as i can. you ready?

step one:

you can start first by watching this two minute video from Be The Match.

<iframe width="640" height="360" src="http://www.youtube.com/embed/bh_xoXf16AE?rel=0" frameborder="0" allowfullscreen></iframe>

step two:

know what options you have with your cord blood. i will say, briefly: you can donate it, save in a private bank, save for a sibling with medical needs or do nothing.

more info on those HERE.

step four:

if you decide you would like to donate {horray horray! you rockstar you}, the steps to follow are all listed out pretty clearly HERE.

i will lay them out for you on here, too, if you aren't a clicker.

1. talk to your doctor. as soon as possible is great. the window you want to hit for setting it up with the cord bank is between 28-34 weeks, so you have 7 weeks to get this done. i would still tell your doctor if you are considering it even if it is earlier though. & mark it on your calendar, so you don't forget. remember that pregnancy brain people told you about? its not a lie. you will thank me.

2. once you have reached your 28 week mark, go to Be The Match & fill out a 12 question survey to learn if you are eligible to be a cord blood donor.

3. if you are eligible, the survey will take you to a page where you select your state. from there, a list of the hospitals in your state that currently collects cord blood for public banks will appear. if your hospital IS listed, you will need to make a quick phone call to contact the cord blood bank. it is listed right next to the hosptials name. they will give you any further instructions & information.

4. if your hospital is NOT listed, select the 'not listed' button. from there you can fill out a referral form online. this will give a cord blood bank in your area your info so they can possibly send you a collection kit. there isn't a guarantee that you will be able to donate, but it is DEFINITELY worth pursuing! at that point you wait.

That is IT! Really not complicated. a few clicks. a phone call. a few minutes talking with your doctor & look what you just did?

you saved a baby isaac just like that!

the website, i really think is quite clear, but if you have any further questions dont give up! email someone at Be The Match. I have talked with many of them & they are there to help you out! you can feel free to contact me as well. i won't be able to answer questions quite so well, but i will do my darndest.



{p.s. FA Fundraiser coming in the next week so keep checking back! we have some pretty great things to give away for you guys!}

May 9, 2013

{isaacs new groove}




isaacs cast came off a week ago tuesday! i've been bad at keeping people updated. we've had some friends that have been surprised to see it off because i just haven't really let anyone know!
i 'deleted' my facebook...two weeks ago now? thats probably for another post. daniel did too. we both feel like our minds are so much quieter, but that was also another way of keeping people updated & that is gone now, so i will definitely need to start blogging a bit more so people can know whats going on.

so the CAST! the whole process of getting it off, once again, wasn't fun. daniel came for moral support. isaac screamed like crazy the whole time, which is a shame because the man that takes the casts off in their office is so kind & that is the only time isaac sees him. not to mention the fact that we just hate to see him crying like that. he has just become really sensitive to anyone other than family touching him. i can't say i blame him.

it has been a week and a half now. he has no restrictions with his arm at all - his dr said he could start crawling (ha) if he wanted to, but he is still really sensitive to any kind of touch on it. i've been trying to rub it really gently with coconut oil a little every day on the scars to kind of counter-act some of the touchiness. we're making very slow progress. he still cries most every time it is touched, but he is starting to move it again on its own & bend it at the elbow again. he's not moving his fingers much, but we're getting there.

ONE LAST THING:
may is FA awareness month & we are doing another blog party a lot like last year, only this year we are  working on a pretty kickin fundraiser that we are saving for the end of the month. you guys...its going to be aweeeeesome! so be looking out for quite a few more posts from me this month!